Haemoglobinopathy Education senior project manager

Haemoglobinopathy Education Senior Project Manager

The closing date is 01 March 2026.

The haemoglobinopathy education programme is funded by the health and inequalities team within NHSE and is aimed to locate, develop, create and improve education tools on haemoglobinopathy diagnoses, in a patient centred way for affected individuals, parents and carers, health care professionals (HCPs) and the public.

The systemic issues identified within care pathways of both sickle cell disease and thalassaemia is the clear and urgent focus for Education and Prevention. Gaps in knowledge, persistent misconceptions and negative attitudes alongside lack of awareness and support in the wider community contribute to poor experience and outcomes for individuals living with the conditions. Improving awareness and understanding of both conditions will lead to informed decisions about conception as well as better health and social outcomes for those affected with the condition, with the aim to prevent serious outcomes of the condition by addressing modifiable factors.

Main duties of the job

The post holder will work with a core haemoglobinopathy education programme team, which will consist of a patient information writing lead, a project manager/policy fellow who provide support, and the education project lead Dr Kesse Adu - a specialist in managing patients with haemoglobinopathy diagnoses.

The post holder will also be required to coordinate and liaise with patient groups, the education leads across all 4 thalassaemia HCCs and also liaise across the 10 sickle HCCs to ensure awareness of the project and maintain engagement from the clinical community involved in patient care. This post is aimed at driven, self directed and highly organised collaborative individual, who has ability to offer strategic and operational input as well as support, complete a gap analysis and help prioritisation with input from clinicians and the patient community. They will need to consult regularly with, and interact with clinicians, patients and the public.

They will lead on the launch of the completed project, set key performance indicators by which success will be measured.

About us

The Trust consists of St Thomas' Hospital at Waterloo, including the Evelina Children's Hospital, Guy's Hospital at London Bridge and the Royal Brompton and Harefield. Our hospitals have a long and proud history, dating back almost 900 years, and have been at the forefront of medical progress and innovation since they were founded. We continue to build on these traditions and have a reputation for clinical, teaching and research excellence.

We provide a full range of hospital services for our local communities, as well as community health services for people living in Lambeth and Southwark. We also provide specialist services for patients from further afield, including cancer, cardiac, kidney, women's and orthopaedic services, and we are home to the Evelina Children's Hospital. We have one of the largest critical care units in the UK and one of the busiest A&E departments in London. See for further details.

Job responsibilities

• Working with the project team
  • Complete a gap analysis on current education materials on haemoglobinopathy diagnoses aimed at the following groups:
    • Inheritance
    • Early life
    • Childhood
    • Transition
    • Conception/fertility
    • Adulthood
      • Co morbidities/complications
    • Ageing
    • Travel
• Coordinate with HCCs, allied health groups, academic institutions and public groups to set priorities.
• Ensure the project group delivers the completed project on time and meets all agreed time points.
• Ensure at the project's end there is an evidence based, complete set of information or links to appropriate information hosted on an easily accessible platform for the groups noted above.
• Liaise to ensure all HCCs have an agreed education assignment plan to reduce replication of work.
• Coordinate and collaborate with multiple external stakeholders including HCC network education leads, clinical experts and patient groups and forums.
• Participate in clinical governance activity to ensure information produced is complete and evidence based.
• Support and work collaboratively with the overarching haemoglobinopathy education project team in other areas as deemed appropriate and necessary by the project lead to ensure timely delivery of the project.
• Develop and use data, evidence and insights to formulate and drive actions for delivery of this education project.
• Maintain flexibility in the working week to participate in activities that ensure a high standard of the completed project.
• Organise patient, public and clinician input and review groups, to ensure accessible and appropriate tools are developed.
• Organise and minute regular meetings with the project team.
• Report regularly to the project lead.
• Participate in events to launch and publicise the project and prepare a report of the completed work suitable for different audiences including patients, HCCs, the project lead and funders.

Person Specification Education

• Masters degree or demonstrable evidence of equivalent experience
• Evidence of recent and ongoing continuing personal development relevant to the role

Experience

• Extensive previous experience of working at a senior level in a commissioning, business management
• Experience in health care management

Knowledge

• Understanding of health inequalities
• Direct experience delivering a project for a high need but rare group

Behaviours and skills

• Demonstrate a high level of computer literacy and highly competent use of Windows operating systems and Microsoft Office applications
• Experience working across organisational boundaries in the Health Service
• Ability to plan and implement effective projects

Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

Address

Guy's and St Thomas' NHS Foundation Trust

Salary

£85,431 to £97,148 a year, inc. H.C.A

Contract

Fixed term

Duration

6 months

Working pattern

Full time

Reference number

196 SMT1793D

Job location

Guy's and St Thomas' NHS Foundation Trust