Senior Information and Education Manager

Senior Information and Education Manager actionpf.org

Job description Job title: Senior Information and Education Manager

Location: Hybrid role, with attendance at the charity's Peterborough office for team meetings, collaboration and other key activities, typically on a quarterly basis, alongside travel to meetings, events and partner sites as required.

Salary: Band 4 £40,000-£45,000 per annum.

Hours: Full-time, 37.5 hours per week. Flexible working is supported. Occasional evening or weekend work may be required for events, with time off in lieu.

Reports to: Director of Support and Services

Direct Reports: Education and Events Co-ordinator

About Action for Pulmonary Fibrosis Action for Pulmonary Fibrosis (APF) is the UK's leading patient charity for people affected by pulmonary fibrosis. We fund research, campaign for improved care, and provide trusted support and information.

Purpose of Role The Senior Information and Education Manager will lead APF's patient information and education work, ensuring people affected by pulmonary fibrosis can access clear, accurate, trusted and accessible information when they need it most.

This role is both strategic and hands on. The postholder will set the direction for APF's information and education offer, while also drafting and developing new patient information, identifying content gaps, improving existing resources and making sure APF's information remains evidence-based, up to date and shaped by lived experience.

The postholder will lead the development of APF's trusted information and education offer across digital, print and live formats. This includes reviewing patient information on the website, redrafting and improving content, strengthening how resources are ordered and distributed, and ensuring information reaches people affected by

Our ambition is bold, our focus is clear, and our work is driven by people living with pulmonary fibrosis. We are working to ensure that no one faces pulmonary fibrosis alone and that fewer lives are lost to this disease.

pulmonary fibrosis, healthcare professionals and other audiences in effective and cost conscious ways.

As a manager, the postholder will lead the workflow of the Education and Events Co ordinator, ensuring APF's education and events activity is well planned, high quality, joined up and aligned with wider information priorities. They will provide the strategic oversight, quality standards and senior management support needed so that education sessions, events, registration processes, follow up journeys and impact reporting are delivered well.

This role supports APF's wider strategy by helping people access trusted information, education and support throughout their pulmonary fibrosis journey. It contributes particularly to APF's ambition to provide high quality information and education, improve patient experience, and ensure that no one faces pulmonary fibrosis alone.

Key responsibilities 1. Strategic Leadership of Information and Education

• Lead APF's patient information and education work, setting a clear direction for how information is developed, reviewed, delivered and improved.
• Develop and maintain an information and education roadmap, aligned with APF's strategy, audience needs and organisational priorities.
• Lead regular audits of APF's information and education offer, identifying gaps, duplication, risks and opportunities for improvement.
• Monitor emerging needs, audience feedback, service insight, clinical developments and wider health information trends to shape future priorities.
• Ensure APF's information and education offer is accessible, inclusive, evidence based, clinically reviewed and grounded in lived experience.
• Work with senior colleagues to ensure information and education activity supports APF's wider work across support, services, policy, communications, fundraising and research.
• Represent information and education at the Operational Leadership Group, contributing to cross charity planning, decision making and delivery.

2. Patient Information Development and Content Ownership

• Lead the drafting, development and improvement of APF's patient information, including web content, printed resources, guides, factsheets, email content and education materials.
• Identify priority content gaps and lead the development of new resources to meet the needs of people affected by pulmonary fibrosis.
• Review and redraft existing patient information so that it is clear, accurate, accessible, up to date and easy to use.
• Ensure information is written in plain English, structured around user needs and suitable for people with different levels of health literacy.
• Develop information in different formats, including digital, print, video, audio, easy read or other accessible formats where appropriate.
• Ensure content reflects the needs of patients, carers, families and people from under served communities.
• Coordinate clinical review, expert input and lived experience review so that information is trustworthy and meaningful.
• Maintain a clear content lifecycle, including creation, approval, publication, review, update and retirement of resources.

3. Website Information Review and Digital Content Project

• Lead a full review of patient information on APF's website, assessing accuracy, accessibility, structure, tone, gaps and user experience.
• Redraft and improve website patient information so that people can find clear, relevant and supportive content at different stages of their pulmonary fibrosis journey.
• Work with Communications and Services colleagues to improve the way information is organised, signposted and maintained online.
• Ensure web content follows good practice in digital health information, accessibility, plain language and inclusive design.
• Use website analytics, search data, feedback and user testing to understand what people need and where content can be improved.
• Support the wider website project by providing expert input on patient information, content structure, resource pathways and user journeys.
• Ensure digital information is linked appropriately to education sessions, support services, newsletters, campaigns and wider APF activity.

Key responsibilities (continued) 4. Information Distribution and Resource Ordering

• Relaunch and manage APF's information distribution process so that resources reach people who need them in a timely, effective and cost conscious way.
• Review and improve the website ordering process for information resources.
• Develop clear and appropriate ordering pathways for different audiences, including patients, carers, healthcare professionals, support groups and clinical teams.
• Work with colleagues to balance access, cost, stock control, postage, print volumes and environmental considerations.
• Monitor demand for printed and digital resources, using data to inform production, stock management and future planning.
• Ensure distribution processes support good data capture, follow up and signposting where appropriate.
• Work with Communications, Services, Data and Supporter Care colleagues to ensure resource journeys are joined up and user friendly.

5. Quality, Standards and Governance

• Review and maintain APF's standards and processes for developing, reviewing and approving patient information.
• Lead work towards PIF TICK or equivalent health information quality accreditation, where agreed.
• Ensure content is evidence based, clinically reviewed, current and clear about sources and review dates.
• Strengthen expert review, lived experience review and sign off processes.
• Ensure information meets accessibility, health literacy and inclusive communication standards.
• Lead on health information risk management, including accuracy, outdated content, unclear messaging and emerging misinformation.
• Develop APF's organisational approach to health misinformation, including monitoring risks, identifying opportunities for myth busting and coordinating appropriate responses.
• Work with Communications and senior colleagues to ensure APF responds consistently and responsibly to misinformation or emerging public concerns.
• Ensure safeguarding considerations are built into education spaces, information resources and live or online activity.

6. Education Programme Oversight

• Provide strategic oversight of APF's education programme for people affected by pulmonary fibrosis.
• Line manage and support the Education and Events Co ordinator to plan, coordinate, deliver and evaluate high quality education sessions and events.
• Ensure education sessions are informed by patient need, clinical insight, lived experience and APF's information priorities.
• Oversee the annual education calendar, ensuring topics, audiences, speakers and formats are planned effectively.
• Ensure education activity is accessible, inclusive and available in formats that work for people with different needs, including those who are digitally excluded or less confident online.
• Support the Education and Events Co ordinator with senior decision making, prioritisation, stakeholder management and problem solving.
• Ensure registration, follow up, database flows and onward user journeys are aligned with APF's wider approach to information, support and engagement.
• Oversee impact reporting and learning from education sessions and events, ensuring insight informs future planning.

Key responsibilities (continued) 7 . click apply for full job details